Indiana Hemophilia & Thrombosis Center
Location
Indianapolis, IN | United States
Job description
What You Will Do
As a Genetic Counselor, you will provide genetic education, counseling, and support to patients and/or families with genetic or suspected genetic disorders for which they have been referred to IHTC. In this role, you will identify family members at risk, interpret genetic information and results, and review available options with patients and/or families. You may also provide services to patients and/or families with a diagnosis of a bleeding disorder, hemoglobinopathy, vascular or lymphatic disorders, other rare hematologic conditions, or other concerns being addressed by the IHTC medical team.
The Opportunity
- Review medical records and interviews patients and/or families to obtain patient and/or family medical histories and records the findings. Assess family history to determine genetic risk and provide genetic education regarding inheritance.
- Document family pedigrees entering all information into the IHTC Genetics Registry Database. Update this data when available and assists in identifying individuals at-risk in Indiana.
- Analyze pedigrees to identify family members who are at-risk and discusses with the patients and/or families how information can be communicated.
- Assist in identifying appropriate genetic testing. Provide education to the patients and/or families regarding the option of testing ensuring that they understand the possible implications of a genetic test result.
- Interpret genetic results and communicates with healthcare providers and patients and/or families about the significance of the results.
- Participate in comprehensive clinic for patients with bleeding disorders and collaborates with the multidisciplinary team to establish an appropriate plan of care. Attend multidisciplinary case conferences when applicable.
- Review available medical literature and identifies current data useful in the care of patients and/or families.
- Support patients and/or families in identifying resources relating to obscure hematological conditions.
- When indicated, review with patients and /or families diagnosis specific recommendations for pregnancy as well as reproductive options.
- Document patient related activities and relevant data in charts and develops plans for follow-up as needed.
- Develop and present educational materials and programs for internal and external use.
- Provide personalized and culturally sensitive genetics services considering patients and/or families beliefs and desires as well as ensures confidentiality.
- Participate in IHTC data collection initiatives as requested.
- Serve as a resource to IHTC staff regarding genetic information and providing optimal genetics services to IHTC patients and/or families.
- Assess patients and families psychological and emotional needs regarding their genetic risk, diagnosis, and test results. Refer to multidisciplinary team members when indicated.
- Participate in IHTC events and initiatives as requested.
- Assist with IHTC research studies and related activities as necessary.
This position requires occasional travel to outreach clinics throughout the state of Indiana. Travel to perform home visits may infrequently be necessary as well.
Requirements
Requirements
- Master’s degree in related field
- Board Certified by ABGC or ACMG or board eligible.
- Minimum 3 years of related experience.
Benefits
Why join our team?
The IHTC is a not-for-profit program based in Indianapolis and offers a competitive salary and benefit package.
The IHTC is the only federally designated comprehensive hemophilia program in Indiana and serves the entire state through services available in Indianapolis and at outreach clinics.
The IHTC is a leader in hemophilia care, education and clinical research and has a dedicated on-site multidisciplinary staff to ensure availability of a wide range of required services.
The IHTC participates in national and international clinical research, including new infusion products and therapies, investigation of long-term outcomes, and the impact of associated conditions. The IHTC research program provides patients access to new therapies, and an opportunity to improve care. Our center has more than 50 clinical research projects involving bleeding disorders, sickle cell disease, thrombosis and more.
The Indiana Hemophilia and Thrombosis Center is an Equal Opportunity Employer.
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