Associate Director, Patient Advocacy
Location
Cambridge, MA | United States
Job description
The Associate Director, Patient Affairs creates and maintains strong relationships with the patient community and patient advocacy groups in the neuromuscular space to enhance the individualized approach to patient care that defines Sarepta's commitment to our patient communities. This position reports to the Senior Director, Patient Affairs to lead our collaborations with patient advocacy groups in various rare disease communities, represent the patient perspective as an active participant of cross-functional working teams, and develop innovative solutions and programs to meet the dynamic needs of the patient communities.
Primary Responsibilities Include: - Providing insight into the pulse of disease communities and ensuring strong collaborations with patient advocacy groups.
- Engaging the Advocacy Community for feedback regarding critical decisions that will impact the community
- Building relationships and collaborating with existing and/or evolving patient associations.
- Guarding and propelling Sarepta's Patient Mission value by developing and executing patient voice initiatives
- Championing community insights, concerns and perspectives inside and outside Sarepta
- Successfully work with external patient organizations to help them grow and develop into high-functioning, sustainable organizations
- Staying current with relevant information and resources regarding industry and health care legislation, RNA and Gene therapy therapeutic development, and comprehensive disease state awareness.
- Providing updates regularly to disease communities, especially as related to clinical trial and pipeline evolution.
- Driving optimized patient engagement and contributing to the development of patient experience data
- Helping to form relationships throughout the neuromuscular community
- Oversee development and management of community-facing educational presentations and newsletter materials, building strategy to suit the changing landscape of in-person community engagement
- Ensures that all employees at Sarepta have an opportunity to learn about the patient perspective and Sarepta's commitment to the communities we serve.
- Works compliantly in interactions with patient advocates, patients, families and caregivers per internal and external guidelines.
- Responsible for project management and execution of patient affairs initiatives
- Completes administrative duties in a timely fashion
- Other related duties as required
Desired Education and Skills: - Previous work with patients and families in the rare disease field strongly preferred
- Bachelor's degree in science, social science or related field
- Minimum of 3 years of patient advocacy experience, with 8+ years of progressive experience in a healthcare / biopharma setting
- Advanced degree in health sciences preferred
- Bilingual- English/Spanish preferred
- Strong project planning and management skills, including problem-solving and risk mitigation
- Relationship or account management skills
- Self-directed learner with an understanding of drug development and clinical program development
- A team player who will work collaboratively to support team success
- Excellent interpersonal, oral and written communication skills including strong presentation skills
- Strong PowerPoint presentation content and design skills
- Ability to relate with a diverse group of individuals and develop rapport quickly
- Ability to influence in a proactive, objective and diplomatic manner within all levels of the company and outside community leaders
- Ability to build clarity from ambiguity
- Work collaboratively, independently and with a sense of urgency
- Demonstrated ability to work under pressure and manage multiple responsibilities
- Ability to use both strategic and tactical approaches to problem-solving and multi-tasking
- Able to create a positive work environment for team to help retain and develop staff
- Recognized by former peers, colleagues, managers and direct reports for attributes congruent with Sarepta Values
- Proficient in basic computer skills and Microsoft Word systems
- Boston area location a plus, the ability to work in Cambridge, MA will be required at regular intervals moving forward.
- Travel may be significant at times, and is largely shaped by community need. Expect 30-40% travel with significant weekend involvement.
#LI-Remote
This position is remote. However, you will be expected to work on site at one of Sarepta's facilities in the United States and/or attend Company-sponsored in-person events from time to time.
The targeted salary range for this position is $156,000 - $195,000 per year. Sarepta is making a good faith effort to be transparent and accurate around our hiring ranges. The salary offer is commensurate with Sarepta's compensation philosophy and considers factors including, but not limited to, education, training, experience, external market conditions, criticality of role, and internal equity.
Candidates must be authorized to work in the U.S.
Sarepta Therapeutics offers a competitive compensation and benefit package.
Sarepta Therapeutics is an Equal Opportunity/Affirmative Action employer and participates in e-Verify.
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