Chairperson

Location

Remote | United Kingdom

Job description

Chairperson 

Action Duchenne are currently searching for a strong individual to guide and steer the organisation to promote the highest standards of Governance and support the CEO and Senior Leadership team to deliver the charity’s strategy. You will be a passionate advocate of the charity and its mission and raise its profile. 

About you: 

Action Duchenne strongly believes that everyone has talents to offer and share in many ways through peoples’ personal, volunteering, and working lives. We are keen to recruit trustees who have experience in one or more of the following areas:  

•    Legal and governance 
•    HR
•    Fundraising and business development
•    Lived experience of disability (either personal or as a parent/carer). 
•    Proven Chair or board leadership credentials, with the ability to manage a high calibre Trustee group.

This is not a paid position as being a trustee. However, the charity will be covering any reasonable expenses you incur in fulfilling your trustee role, including travel and childcare. 

Key Skills : 

•    Provide leadership to the charity, acting as the guardian of the organisation’s charitable mission and purpose.
•    Ensure that the board operates within its charitable objectives, provides a clear strategic direction for the charity, and fulfils its duties within financial scrutiny and risk assessment. 
•    Maintain a constructive and positive relationship of support and challenge between the CEO and the wider organisation.
•    Establish an open and collaborative relationship with the CEO and the Senior Leadership Team, ensuring they are held to account for achieving the strategic objectives whilst respecting the boundaries between the two roles.
•    Support the CEO to represent the interests of Action Duchenne externally where appropriate. 

About us: 

Founded in 2001 as the first national charity dedicated to supporting children, young people, adults, and their families living with Duchenne muscular dystrophy. 
Our work to date has seen over £13 million in ground-breaking research, educational programmes, and campaigns, collaborating with more than 15 organisations globally to fund projects across four continents. 

Location: London (Fully Remote) 
Contract: Volunteer role – Input to be discussed 
Salary : Volunteer Role, Reasonable Expenses covered. 

You may also have experience in the following: Trustee, Voluntary, Poverty Relief, Vulnerable People, CIM, CIF, CIPD, Board Membership, Charity Leadership, Board Leader, Disability support, Charity, Charities, Third Sector, Not for Profit, NFP, etc.

REF-212 195

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