With Kids
Location
Scotland | United Kingdom
Job description
Are you looking for a role in which you will improve the lives of families in your community? A role that enables youto work differently, build your knowledge and skills and feel valued by clients, colleagues and the organisationyou work for?
It’s an exciting time to be part of Scottish Huntington’s Association with the launch of Standing Tall: A StrategyFor Growth 2023 – 28 to transform the care and support of Huntington’s families, expand services, raiseawareness and deepen our involvement and support for world-leading research and clinical trials.
We are looking for a Health and Social Care professional to join our nationwide network of Huntington’s DiseaseSpecialists to provide care management, specialist assessment and emotional support to individuals and familiesacross Scotland.
Working in partnership with local Health and Social Care teams, you will also provide advice, training and educationto professionals and voluntary agencies involved in all aspects of Huntington’s disease care.
The successful candidate will be enthusiastic and motivated to have a positive influence on the quality of life ofthe individuals and families they support. This role is open to medical and health and social care staff frombackgrounds such as nursing, allied Health, social work and medicine. Professional body membership is essential.Previous experience of Huntington’s disease is advantageous but not essential as full training will beprovided.
You should be able to work autonomously in this challenging and rewarding position. Good listening, communication andinterpersonal skills are vital, as are excellent timekeeping and caseload management abilities. Community-basedpractice knowledge, a driving licence and use of a car complete our list of essential criteria. The successfulcandidate will be subject to an enhanced disclosure check.
Scottish Huntington’s Association is the only charity in Scotland dedicated exclusively to the care and support ofindividuals and families whose lives are impacted by Huntington’s disease, an incurable neurological conditionwith severe and complex physical, mental health and cognitive symptoms.
You will find a values-driven organisation, founded by families for families and recognised at national andinternational levels for expertise in supporting the Huntington’s disease community.
Please complete the Application Form to tell us about who you are and your experience/impact in previous or currentroles.
You will find the Application Form, which includes a link to the Person Specification document, more informationabout the role, and the downloadable Equal Opportunities Monitoring Form in the vacancies section of our websiteat hdscotland.org/volunteering/vacancies
Email your application, including the Equal Opportunities Monitoring Form, with a subject line of Huntington’sDisease Specialist (National) to [email protected] .
Closing date for applications: noon 4th March 2024
Interview date: 14th March at Scottish Huntington’s Association, Business First, Burnbrae Road, Paisley
Find out more about Huntington’s disease and the work of Scottish Huntington’s Association at hdscotland.org .
Region: South East Scotland or South West Scotland (negotiable)
Are you an experienced financial wellbeing advisor who has a passion to improve the quality of life and experience ofthose living with a neurological condition? This rewarding role offers the opportunity to work directly withfamilies, share your expertise, and develop your skills while leading a high performing team in support theHuntington’s disease community.
Our Financial Wellbeing Service delivers bespoke advice across a range of money topics to clients living withHuntington’s disease across Scotland and has delivered more than £6million in financial gain for families since2015.
About the role
We are looking for someone who is enthusiastic and motivated to have a positive influence on the quality of life forindividuals and their families impacted by Huntington’s disease (HD) by managing and delivering a high qualityfinancial wellbeing and energy advice service. As Financial Wellbeing Service Lead you will ideally haveexperience in service management as well as mentoring and supporting others in the advice sector. We expect youto have considerable expertise in delivering advice to vulnerable groups across at least two out of our fourmain advice areas – welfare rights; debt advice; energy advice; financial planning and products - and be willingto learn in any area where you have less experience. The successful candidate should be able to work flexiblyand autonomously using their own initiative. Strong leadership and good listening, communication andinterpersonal skills are essential, as are excellent organisation and caseload management. The post holder willhave high attention to detail and able to work collaboratively with a wide range of professionals to provide aunique, high quality service to families.
You will play a key role in the mission of Scottish Huntington’s Association as a member of our Extended LeadershipTeam and work with multiple stakeholders including Huntington’s Disease (HD) Specialists, the Youth Service andother appropriate agencies to deliver an effective service to families impacted by Huntington’s disease. Youwill be responsible for overseeing the day to day operations of the Financial Wellbeing Service providingleadership, support and supervision to team members, effective management of budgets, co-ordinating with theIncome Generation team to provide service information to assist with service funding applications, and liaisingwith funders where appropriate.
The successful candidate will also have a caseload and work directly with families, delivering a holistic adviceservice in South East Scotland that provides advice, information and support on a range of money issues;accessing welfare benefits, debt, planning for the future and energy advice.
About us
People impacted by Huntington’s disease need specialist services to cope with a severe and complex disease, theimpact on families and a lack of awareness amongst health and social care providers and the wider public.
Scottish Huntington’s Association is the only charity in the country exclusively dedicated to providing expert andpersonalised support for those impacted by Huntington’s disease.
Our personalised support reduces unnecessary hospital admissions; supports carers and other family members; lowershousehold poverty; and alleviates wellbeing risks to children and young people living in Huntington’sfamilies.
The successful candidate will join Scottish Huntington’s Association at an exciting time with the launch of StandingTall: A Strategy for Growth 2023 – 28 to transform the care and support for Huntington’s families throughoutScotland. We are an ambitious and hard-working organisation, recognised at national and international levels forour expertise and approach.
About Huntington’s disease
Huntington’s disease is caused by an inherited faulty gene that damages the brain over time. People with the diseasecan eventually lose the ability to walk, talk, eat, drink and care for themselves, requiring specialist supportfrom those who understand the condition.
The disease is genetic, meaning it is passed down from one generation to the next. It therefore impacts entirefamilies over generations rather than individuals alone. Anyone with a parent who has Huntington’s has a 50%risk of inheriting the condition from them.
Generally speaking, symptoms begin to develop between the ages of 30 and 50 and can take between 10 and 25 years fromstarting until the end of life. However, each case of Huntington’s is unique and can vary dramatically both interms of age of onset, speed of advance and range of symptoms.
Around 800 people in Scotland are living with the symptoms of Huntington’s disease right now. A further 3,200 areestimated to be at risk of developing Huntington’s disease as a result of inheriting the faulty gene.
About you
What we offer
We’re looking for an enthusiastic and motivated individual to join the Policy and Influencing team.
Reporting to the Public Affairs and Campaigns Manager, the Public Affairs and Campaigns Officer – Scotland willdeliver our organisation’s Scottish Parliament engagement and influencing campaigns in Scotland as part of ourintegrated influencing activity.
Working with the rest of the Policy and Influencing and Scotland teams, you will plan and deliver effective publicaffairs and campaigns activity to change policy that impacts people affected by stroke. You will also workclosely with colleagues to develop and deliver influencing activity at a local level in Scotland for the StrokeAssociation.
This role requires regular travel to Edinburgh and occasional travel across the rest of the UK, including overnightstays.
To fulfil the role, you must be a resident of the UK and have the right to work in the UK. .
The ALLIANCE is excited to be recruiting a new Service Designer to join the ALISS (A Local Information Service forScotland) team. We are looking for a motivated and creative individual to join our small but dynamic team. Inthis role, you will have the opportunity to contribute to the development of user-focused service experiences,collaborating closely with cross-functional teams. This position is ideal for a recent graduate or someone witha passion for service design and a willingness to engage in user research activities.
The Service Designer will undertake service design activity across all aspects of the ALISS programme.
The successful candidate for this role would be expected to have:
Previous applicants for Human Centered Design Lead need not apply.
As an ALLIANCE employee you will benefit from:
The ALLIANCE is a healthy working lives employer and encourages a healthy work life balance and is happy to talkflexible working.
The ALLIANCE recognises that in real life, great people don’t always ‘tick all the boxes’. Even if you don’t meetevery point on the job description, if this role and our organisation feels like a good fit for you, we stillwant to hear from you.
The ALLIANCE is excited to be recruiting a new Digital Hub Assistant to join the ALISS (A Local Information Servicefor Scotland) team.
The Digital Hub Assistant will support the day-to-day operations of the ALLIANCE Digital Hub which incorporates theALISS – A Local Information for Scotland and Digital Health and Social care Programmes.
The successful candidate for this role would be expected to have:
As an ALLIANCE employee you will benefit from:
The ALLIANCE is a healthy working lives employer and encourages a healthy work life balance and is happy to talkflexible working.
The ALLIANCE recognises that in real life, great people don’t always ‘tick all the boxes’. Even if you don’t meetevery point on the job description, if this role and our
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