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Location

Greenhithe, Kent | United Kingdom

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Job description

We are a small national charity supporting children and adults with a rare genetic disease: can you run digital marketing for us?

What will you be doing?

We are advertising for a part time role to run our digital marketing.

The charity was set up in 2019 to provide advocacy, support and information for individuals across the UK who have X-linked hypophosphataemia (XLH). XLH and related disorders are rare and so communications requires a tailored approach, working through our community and the health system to improve access to better care and treatments.

We have a recently redesigned our Wordpress website, a lively Facebook community and publish regular newsletters to keep the community informed.  We are looking for an individual with an interest in supporting the Charity, who

• Has the ability to work as a team member and contribute flexibly
• Has strong digital communication and design skills
• Has a can-do attitude and a desire to make connections
• Is motivated to contribute to better health outcomes for people from all walks of life

The ideal candidate will be able to dedicate around 5 hours a week to ensure our website, blogs and social media remain relevant and timely. You will work closely with the Chair, who holds overall responsibility for Marketing and Communications.

What are we looking for?

• Digital communication skills, with experience of using
  • Wordpress
  • Mailchimp
  • Canva
  • YouTube
  • Multiple social media platforms
• Strong copywriting skills and some design skills
• The curiosity and confidence to engage with our community

What difference will you make?

We hope that you will feel part of a small, friendly team and that you will see the impact you have helping us to thrive as a strong patient-led charity.

Before you apply

• Please contact us via Reach with any questions. Interviews will be an informal Zoom chat with one or two of the volunteer trustees.

Causes

• Health and well being / research and care

Organisation type: 

Charity

XLH is a rare genetic disease with significant impact on those that have it and their families. The mission of XLH UK is awareness and education for affected families, medical professionals, and...

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Salary